Rural Gambia Haemophilia Patients Face Critical Healthcare Gaps

By: Madi S. Njie

The Safe Motherhood and Haemophilia Foundation, on 11th October 2025, observed “Family Day” on haemophilia at the Badala Park Hotel while highlighting growing concerns over healthcare access and the shortage of trained medical professionals in rural Gambia.

The event, which brought together patients, families, and healthcare stakeholders, aimed to raise awareness about haemophilia, a rare genetic bleeding disorder that requires regular clotting factor therapy. Discussions focused on the challenges faced by patients in remote areas such as Farafenni, Bansang, and parts of the Greater Banjul Areas, where specialized medical care is severely limited.

The urgency of the issue was underscored by the recent death of a patient in Farafenni. The child’s mother blamed inadequate medical care, stating her daughter required attention from a haematologist, rather than general surgery. Another parent, Ebrima Top from Kudang, shared a similar tragedy, having lost a child to haemophilia.

“There is a clear shortage of healthcare personnel in these communities,” a foundation representative said, urging stakeholders to address gaps in expertise and medical infrastructure. Parents also raised concerns about limited access to testing and treatment. Currently, the only machine for haemophilia testing is in Banjul, forcing rural patients to travel long distances for both diagnosis and medication. “Access to healthcare is extremely limited, and it’s putting lives at risk,” one parent noted.

Mr. Vandy Jayah, President of the Foundation, emphasized ongoing efforts to improve care, including the development of a patient ID system to help healthcare providers better manage cases and ensure timely treatment. The Foundation has also launched public awareness campaigns to correct misconceptions about hemophilia, noting that misdiagnosis is common due to limited professional training.

The Family Day also provided children a safe environment to socialize, while Josephine Touray, Secretary General, highlighted progress in healthcare infrastructure. Previously, patients had to travel to Senegal for treatment, but local testing and care are now available in Banjul. Touray explained that the Foundation was established after Mr. Jayah witnessed a severe hemophilia case and recognized the urgent need for support in The Gambia.

The Foundation continues to collaborate with the government to improve the management and storage of medical equipment and medication, providing free healthcare access for hemophilia patients. Touray reminded caregivers and patients of important safety measures, including regular monthly check-ups with hematologists and informing doctors about the condition before any medical procedures.

Mr. Jayah added that hemophilia is an inherited disorder, passed from either parent to children, highlighting the importance of awareness, early diagnosis, and proper care. Despite progress, both Jayah and Touray stressed that much work remains to ensure all patients, particularly in rural areas, have access to the care and resources they need.

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 By: Madi S. Njie The Safe Motherhood and Haemophilia Foundation, on 11th October 2025, observed “Family Day” on haemophilia at…
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